fishing for suggestions
Question:
Hi, I just found this group this morning while researching pain management. I’m looking for information that I can take into my Doc. He has good intentions but little time for keeping up on new developments.My situation: cervical spinal fusion (skull to c3) following accident 12-95. Post-surgical bilateral numbness and pain traced to spinal cyst caused by shunt left in place following fusion surgery. 9-98 surgery to close shunt gave temporary relief. Currently experiencing "BAD sunburn-like" feeling all over upperbody with several "hot" spots more severe. Taking prozac–emotionally feel great. Low dosage flexeril and amitriptyline for pain control—no effect. Also on nerurontin for pain control–no effect. Have "backup" script for roxicet when things become totally unbearable but current Dr. will only give about 30/YEAR because he fears I will become addicted. However, it takes 1 to 2 of those to have a normal-like day where I can function without screaming anytime my clothes or my family so little as touches me. Please, please any suggestions that I can take to the Dr???colleen
Response:
Colleen, Tell your DR. as firm as your able that you are in REAL PAIN and that your not seeking to get DRUGS for any reason other then the purpose of getting on with you LIFE!!!!! Remind him/her that’s why there’s DR’s and there in place to help THE HURTING and tell him that your pain is REAL!!!!!! CW CARES!!! – Hide quoted text — Show quoted text – > Hi, I just found this group this morning while researching pain > management. I’m looking for information that I can take into my Doc. He > has good intentions but little time for keeping up on new > developments.My situation: cervical spinal fusion (skull to c3) > following accident 12-95. Post-surgical bilateral numbness and pain > traced to spinal cyst caused by shunt left in place following fusion > surgery. 9-98 surgery to close shunt gave temporary relief. Currently > experiencing "BAD sunburn-like" feeling all over upperbody with several > "hot" spots more severe. Taking prozac–emotionally feel great. Low > dosage flexeril and amitriptyline for pain control—no effect. Also on > nerurontin for pain control–no effect. Have "backup" script for roxicet > when things become totally unbearable but current Dr. will only give > about 30/YEAR because he fears I will become addicted. However, it takes > 1 to 2 of those to have a normal-like day where I can function without > screaming anytime my clothes or my family so little as touches me. > Please, please any suggestions that I can take to the Dr???colleen
Response:
I have tried the same medication for my chronic pain as you plus a garbage pail more to no avail. Recently a friend gave me a marijuana muffin which decreased my pain level to the point whereby I had my first complete night’s sleep in more than a year. The specialist that I am presently seeing to deal with the pain suggested that I get a prescription from my GP for more that I can take as required. Looking forward to some relief. Jim – Hide quoted text — Show quoted text – > Hi, I just found this group this morning while researching pain > management. I’m looking for information that I can take into my Doc. He > has good intentions but little time for keeping up on new > developments.My situation: cervical spinal fusion (skull to c3) > following accident 12-95. Post-surgical bilateral numbness and pain > traced to spinal cyst caused by shunt left in place following fusion > surgery. 9-98 surgery to close shunt gave temporary relief. Currently > experiencing "BAD sunburn-like" feeling all over upperbody with several > "hot" spots more severe. Taking prozac–emotionally feel great. Low > dosage flexeril and amitriptyline for pain control—no effect. Also on > nerurontin for pain control–no effect. Have "backup" script for roxicet > when things become totally unbearable but current Dr. will only give > about 30/YEAR because he fears I will become addicted. However, it takes > 1 to 2 of those to have a normal-like day where I can function without > screaming anytime my clothes or my family so little as touches me. > Please, please any suggestions that I can take to the Dr???colleen
Response:
Colleen: You are an obvious candidate for referral to a competent pain clinic, especially given a doc who doesn’t have time to keep up with latest developments. Don’t criticize him, just ask for referral to someone with a different area of expertise. I wonder about that >BAD sunburn-like" feeling all over upper body with several "hot" spots >more severe
perhaps you should also see — can anyone help me ? — a neurologist? an allergist? I’m just guessing here. In any event, it’s time to seek additional medical input. Good luck!! –Chips – Hide quoted text — Show quoted text – >Hi, I just found this group this morning while researching pain >management. I’m looking for information that I can take into my Doc. He >has good intentions but little time for keeping up on new >developments.My situation: cervical spinal fusion (skull to c3) >following accident 12-95. Post-surgical bilateral numbness and pain >traced to spinal cyst caused by shunt left in place following fusion >surgery. 9-98 surgery to close shunt gave temporary relief. Currently >experiencing "BAD sunburn-like" feeling all over upperbody with several >"hot" spots more severe. Taking prozac–emotionally feel great. Low >dosage flexeril and amitriptyline for pain control—no effect. Also on >nerurontin for pain control–no effect. Have "backup" script for roxicet >when things become totally unbearable but current Dr. will only give >about 30/YEAR because he fears I will become addicted. However, it takes >1 to 2 of those to have a normal-like day where I can function without >screaming anytime my clothes or my family so little as touches me. >Please, please any suggestions that I can take to the Dr???colleen
Response:
As you all know….I am a BIG supporter of MJ for pain relief. I have seen it work on people with illnesses from glaucoma to AIDS, MS, CP, FMS, CPS, Auto-immune diseases! It is a crime that our government is so caught up in their ridiculous "WAR ON DRUGS" that they will not even look at thousands and thousands of medical records that show it’s worth! There is a wonderful, brave lady in San Fran named Mary that goes around to AIDS patients and gives them MJ brownies…they are delicious, from all reports, and they do the trick! I ask all of you to read the book : Marijuana RX, the patients fight for medical Marijuana by Robert Randall. It is available at Amazon, com, Barnes & Noble.com and Dalton books. ( Robert is a good friend of mine. I do not wish for you to think that this is a spam for his book. Many of you know of our friendship, so I want this understood) It only costs about $12.00, Alice and Robert decided to print it in paperback so that more people would have access to it! {{{{ Peace }}} Joani – Hide quoted text — Show quoted text – >I have tried the same medication for my chronic pain as you plus a garbage >pail more to no avail. Recently a friend gave me a marijuana muffin which >decreased my pain level to the point whereby I had my first complete night’s >sleep in more than a year. The specialist that I am presently seeing to deal >with the pain suggested that I get a prescription from my GP for more that I >can take as required. Looking forward to some relief. >Jim > Hi, I just found this group this morning while researching pain > management. I’m looking for information that I can take into my Doc. He > has good intentions but little time for keeping up on new > developments.My situation: cervical spinal fusion (skull to c3) > following accident 12-95. Post-surgical bilateral numbness and pain > traced to spinal cyst caused by shunt left in place following fusion > surgery. 9-98 surgery to close shunt gave temporary relief. Currently > experiencing "BAD sunburn-like" feeling all over upperbody with several > "hot" spots more severe. Taking prozac–emotionally feel great. Low > dosage flexeril and amitriptyline for pain control—no effect. Also on > nerurontin for pain control–no effect. Have "backup" script for roxicet > when things become totally unbearable but current Dr. will only give > about 30/YEAR because he fears I will become addicted. However, it takes > 1 to 2 of those to have a normal-like day where I can function without > screaming anytime my clothes or my family so little as touches me. > Please, please any suggestions that I can take to the Dr???colleen
Response:
Filed under: Amitriptyline
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